MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

TMAU Test through MEBO Research

MEBO Research International
TMAU Urine Test

SEE UPDATES HERE
$150 plus
shipping costs

for one test,

$250plus
shipping costs

for 2 tests over time.
TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please..
(supplied with test-kit)

TMAU Test
Results Form

sent via email

For Questions and Answers, see

MEBO's Interactive
Q & A Forum

Test analysis will normally occur in batches of 15 to 20

DATE: 21 JUL 2014
Now on : Batch #11
Samples analyzed since June 2012 : 208
Samples sold for Batch#11 not returned to MEBO : 18
Current samples received for Batch#11 : 08

Will send 15 to 20 samples to the lab for Batch#11.

Sonya's TMAU diet book

One of our group, Sonya McClinton, has written a 'low choline' recipe book. If you buy from Amazon through these links MEBO get a small % at no extra cost to the buyer


Amazon USA
38 sold

Amazon UK
14 sold
Don't have a kindle ? There are details on the right-side of the amazon pages how to download an app for smartphones, PC, or tablet. For Spain/Canada use the Amazon links in the left sidebar

tell others: send these links
Amazon USA : http://goo.gl/iisvYR
Amazon UK : http://goo.gl/mH2ZyN
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 11-APR-2014:
£ 803.03/GBP
$ 513.00/USD

TOTAL at today's ROE
£1,109.37 = $1,857.75

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Upcoming get-togethers

TMAU support group in Ormond Beach, Florida
contact Hilda at hpostell@rocketmail.com

Let us know if you want a meetup listed

Skype Group

International Skype group

Join through skype : username "Jo Jo"
members so far : 71
download skype (free version)
create a free account
Search for skunkhugsj : Make him a contact
Or ask anyone in the group to add you to group

Bi-Weekly Group Calls

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefixGeneral Conferences: normally every other Sunday starting at 2:00pm - 4:30pm Eastern Time.

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phone line can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

MEBO Community Outreach Program

Click here, Scroll down, Click on
"This belongs on CNN"
Cheryl Fields, Ph.D. (ABD)
MEBO Community
Outreach Director
Book uplifting seminars for free.

Click here for details and scroll downHome/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org


Cheryl's CNN campaign

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Tuesday, July 22, 2014

MEBO SUPPLEMENTS FOR AFRICA DRIVE

SUPPLEMENTS FOR AFRICA DRIVE


There are a few members of the MEBO international community that live in various countries in Africa who have diligently attempted, without success, to purchase the recommended supplements and skin cleansers recommended in the Trimethylaminuria Odor-Management Protocol. Athough some African countries do have access to these supplements and cleansers, many do not.

With support from our MEBO international community, MEBO set up a trial-run shipment of supplements and skin cleansers with eVitamin.com to Nairobi, Kenya on June 3, 2014, so that based on the outcome of this shipment, we could determine whether MEBO could begin a Supplements for Africa Drive. This shipment took 49 days to arrive to its final destination on July 22nd. The benefits of setting up this program with eVitamins.com is that they would be the ones dealing with the various countries' Customs Agencies, and their shipping cost is the lowest available.
The following are the products shipped to Nairobi:
  • (2) Charcoal 260 mg by Source Naturals - 200 Capsules each bottle
  • (1) Chlorofresh Mint by Nature's Way - 16 fl oz
  • (1) B-2 250 mg by Nature's Life - 100 Tabs
  • (1) Salicylic Acid Scalp Shampoo by Collective Wellbeing - 11.5 fl oz
  • (1) Psoriasis Medicated Body Wash by Home Health Products - 8 oz (even though TMAU is not related to psoriasis, this was the only scalp and body wash that has the active ingredient of Salicylic Acid, and natural ingredients, allantoin, Aloe Verga Gel, Carrot Oil, Echinacea Extract, and Jojoba Oil.)

The total cost for all these items was $55.25 and the shipping cost to Kenya is only $37.50 through eVitamins.com (total $92.75 USD).

Since many sufferers in the US and the UK have expressed interest in donating to this program, MEBO has created a PayPal Donate Button that goes directly to the MEBO US PayPal Account or the MEBO UK PayPal Account, according to the donor's preference. When you begin the donation process, it will be clearly indicated that your donation is going to go to the SUPPLEMENT FOR AFRICA DRIVE.

With a small donation from each of us, our fellow-sufferers can share in the same opportunities as other sufferers around the world to try to manage their symptoms. It is very important to point out that these supplements and skin cleansers alone will not control TMAU odor symptoms. It is extremely important to follow the protocol exactly as prescribed in order to decrease the production of TMA in the gut and to cleanse TMA from the body.

PLEASE DONATE!

SUPPLEMENTS FOR AFRICA DRIVE
MEBO US PAYPAL ACCOUNT

***************************

SUPPLEMENTS FOR AFRICA DRIVE
MEBO UK PAYPAL ACCOUNT


Thanking everyone in advance for your donations.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)




SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Use your credit card to make your donation.

A EURORDIS and NORD Member Organization 

Friday, July 11, 2014

BDJ Publication, Halitosis: a new definition and classification


Dr. Murat Aydin has created a new definition and classification to halitosis that will serve to better diagnose the cause(s) of halitosis. He has published a paper in the British Dental Journal (BDJ) today, "Halitosis: a new definition and classification".

British Dental Journal 217, E1 (2014)
Published online: 11 July 2014 | doi:10.1038/sj.bdj.2014.552


This revolutionary concept will be most helpful to our community in better understanding and managing each sufferer’s true cause of his or her own halitosis, which can be one or more of the following classifications, oral, airway, gastroesophageal, blood-borne, and subjective.

Dr. Aydin has been very active in the international online halitosis community, especially in the Bad Breath Halitosis.com community/. Dr. Aydin wrote a paper for MEBO’s 2013 Annual Meetup and Conference held in Memphis, TN, “How we can understand whether halitosis comes from mouth or breath?,” which describes the origin of Oral Halitosis and Breath Halitosis and the differences of their clinical signs. He has also invited the MEBO community to participate in a halitosis study he was conducting, see the following posts:

Please participate in Halitosis Study
Halitosis Study with MEBO Community by Dr. Murat Aydin, DDS, PhD.
Responses Summary Halitosis & Tonsillectomy

Our congratulations go to Dr. Aydin for his publication and this work in his field. This new article is great. I love it. I highly recommend it to all halitosis sufferers and all experts.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)




SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Use your credit card to make your donation.

A EURORDIS and NORD Member Organization 

Tuesday, July 8, 2014

RareConnect sponsored Webinar Update: Exploratory Breath Study

Menssana Exploratory Breath Study


RareConnect sponsored Webinar

DATE CHANGED FROM: July 11, 2014
NEW DATE: Thursday, JULY 17, 2014
TIME: 2:00pm Eastern Daylight Time (EDT)
See The World Clock - Time Zones

LINK TO ACCESS THE WEBINAR https://eurordis.adobeconnect.com/rare_disease_communities/
Enter as guest, no password required.

Topic of Discussion:
The exploratory breath study and general initiatives of the Menssana Research Team with Michael Phillips MD, FACP, FRCP Founder & CEO Menssana Research and other staff.

Click icon
for blog posts on study

In sticking with MEBO RESEARCH'S MISSION, “to initiate research into rare genetic metabolic diseases, particularly those resulting in systemic, difficult to control body malodor and halitosis, including, but not limited to, Trimethylaminuria”, in mid 2012 MEBO partnered with Dr. Michael Phillips, MD, PACP, Professor of Clinical Medicine at New York Medical College, Valhalla, New York, an expert in breath testing, to offer breath testing to our community - to explore biomarkers for body odor and halitosis. MEBO’s primary role was to facilitate testing with patients to make testing available to communities where there was enough demand. There were many hurdles including significant cost suffered by MEBO in shipping the BCA instrument; however, we are happy to say there were 30 participants that traveled to Chicago, Miami, New York, and London. Each participant received his or her testing results shortly after testing, showing over 200+ compounds. We thank each participant for their tireless efforts in the breath testing collection process. We achieved the minimal amount of patients required for a small study of the aggregate test results...(See original post in this blog.)



A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)
The MEBO Forum (English), (español), (Portuguese), (Russian, Форум)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Use your credit card to make your donation.

A EURORDIS and NORD Member Organization