15 members needed to be 'open for projects'
Current total : 5
Sign up here
tick 'patient' and
MEBO Research has become aware of a relatively new website that is specially suited to allow 'patients' and 'researchers' to come together to fund projects of any particular 'rare disease'. I nthe case of our community, the 'rare disease is Trimethylaminuria (TMAU)
The RE(ACT) (commonly known as REACT ) webpage for the TMAU community can be seen here :
RE(ACT) webpage for Trimethylaminuria group
RE(ACT) platform Homepage
REACT is part of the BlackSwan Foundation, a registered Swiss charity that has supporters (in name only) such as Eurordis who fund rareconnect.org. REACT is a very new project. It's first approved project for crowdfunding only opened for crowdfunding this week.
melanocytic nevi project
Each research project has to be approved by REACTs scientific committee before it can be open to crowdfunding. It is expected that any project put to the committee should have a decision made within 3-5 weeks. REACT has a 10% admin fee from each donation to cover admin costs etc. Payments are via Paypal but you don't need a Paypal account.
TMAU and REACT :