MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

TMAU Test through MEBO Research

MEBO Research International
TMAU Urine Test

SEE UPDATES HERE
$150 plus
shipping costs

for one test,

$250plus
shipping costs

for 2 tests over time.
TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please..
(supplied with test-kit)

TMAU Test
Results Form

sent via email

For Questions and Answers, see

MEBO's Interactive
Q & A Forum

Test analysis performed in batches of 15 to 20

DATE: 3 MAR 2015
Now on : Batch #14
Samples analyzed since June 2012 : 239
Samples sold for Batch#14 : 18
Current samples received for Batch#14 : 14

BATCH#13 with 15 samples received by lab on 7JAN15. Test analysis performed in batches of 15 to 20

Sonya's TMAU diet book

One of our group, Sonya McClinton, has written a 'low choline' recipe book. If you buy from Amazon through these links MEBO get a small % at no extra cost to the buyer


Amazon USA
38 sold

Amazon UK
14 sold
Don't have a kindle ? There are details on the right-side of the amazon pages how to download an app for smartphones, PC, or tablet. For Spain/Canada use the Amazon links in the left sidebar

tell others: send these links
Amazon USA : http://goo.gl/iisvYR
Amazon UK : http://goo.gl/mH2ZyN
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 17-DEC-2014:
£ 863.03/GBP
$ 563.00/USD

TOTAL at today's ROE
£0.64/GBP = $1.00/USD

£1,224.17 = $1,908.44

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Upcoming get-togethers

TMAU support group in Ormond Beach, Florida
contact Hilda at hpostell@rocketmail.com

Let us know if you want a meetup listed

Skype Group

International Skype group

Join through skype : username "Jo Jo"
members so far : 71
download skype (free version)
create a free account
Search for skunkhugsj : Make him a contact
Or ask anyone in the group to add you to group

Bi-Weekly Group Calls

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefixGeneral Conferences: normally every other Sunday starting at 2:00pm - 4:30pm Eastern Time.

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phone line can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

MEBO Community Outreach Program

Click here, Scroll down, Click on
"This belongs on CNN"
Cheryl Fields, Ph.D. (ABD)
MEBO Community
Outreach Director
Book uplifting seminars for free.

Click here for details and scroll downHome/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org


Cheryl's CNN campaign

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Tuesday, March 3, 2015

MEBO Annual Meetup/Conference Orlando, Florida 2015

MEBO ANNUAL MEETUP AND CONFERENCE

Embassy Suites Orlando - North
It's that time of year again to hold the MEBO Annual Meetup and Conference. It will be held in Orlando, Florida on the weekend of Friday, April 17th thru Sunday, April 19th. Of course, everyone is invited to stay through Monday or longer, and some frequently come one or more days earlier. The conference is always held on Saturday, and Sunday is a socializing field day, in which we go out as a group see special sites in the city.

Many have already expressed a desire for this meetup to be held at an Embassy Suites because it offer daily complimentary buffet breakfast and "Happy Hour" Manager's Reception from approximately 5:00pm to 7:00pm every evening. Therefore, if you would like to join us this year, please make your reservations as soon as possible to get a good rate. The lowest online rates are nonrefundable, but for only just a little more, you can hold a reservation with your credit card, and it won't be billed until you check out. Check cancellation policy as well. If you live around the area, or want to stay at another hotel, you can still join us. Just let me know by emailing me at maria.delatorre@meboresearch.org, so that we can arrange meeting with you.

AIRPORT TRANSFERES
None of the Embassy Suites in the Orlando area offer courtesy airport shuttle service to/from the hotel. I have checked with the three Embassy Suites in the Orlando area, and although parking is complimentary (one per suite) at the Embassy Suites Orlando - North, none offer complimentary airport transfers. Yellow Cab could cost $49 each way. Perhaps you can coordinate with others who arrive around the same time to share a cab.

MEBO 5TH ANNUAL MEETUP AND CONFERENCE


Date/Time:


Saturday, April 17, 2015
through Sunday April 18th.

Location:

Embassy Suites Orlando - North (4 star hotel)
225 Shorecrest Drive
Altamonte Springs, FL 32701
407 834 2400


Online Reservations:

Book your room as soon as possible to get the lower rate!
Or call their Reservations number and book over the phone,

866-460-7456.

Please come and join me,
so that we can spend some time together and chat.
I look forward to meeting new faces and seeing familiar faces again!


AGENDA FOR MEBO'S 5TH ANNUAL CONFERENCE 2015


LOBBY, Embassy Suites Orlando North
The past 4 conferences MEBO has held included many powerpoint presentation done by our scientists pro-bono specifically for our meetup as well as other presentation performed by the various MEBO Directors. Information discussed in these conferences can be found in THE MEBO BLOG (Scroll down to see all posts in this category).

Since many of our experts are currently in the midst of ongoing research, they are not available to do another presentation for us for this year. Therefore, this year's conference is going to be more informal with open discussions, reading material, and handouts. The following is the agenda for Saturday, April 18 starting at 12:00 noon in my suite:

  1. I will do a presentation on notable results and outstanding trends of the MEBO TMAU test programs, while protecting the privacy of everyone involved. We will highlight and discuss the PROS AND CONS of the urine test vs the genetic test, and some of their inconsistencies.
  2. A great deal of time and emphasis will be given to discussion on diet and nutrition for TMAU and other body/breath odor conditions
  3. MEBO's US Public Relations Director, Glenna, will be discussing a book on living with and managing TMAU
  4. Informal discussion about where MEBO is heading in our pursuit for research
  5. Discussion on our Raising Awareness Campaign (Scroll down to see all posts).

SEE YOU ALL THERE!

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)




SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Use your credit card to make your donation to MEBO.

A EURORDIS and NORD Member Organization 

Monday, March 2, 2015

Research funded by NORD Fund to be published this year


A previous rareconnect webinar with Monell
Research funded by NORD Fund to be published this year
The funding was raised by the community
Funding was around $30K
Grant was won by The Monell Chemical Senses Center

Regular readers will recall that the community raised over $30K to activate the NORD Grant into trimethylaminuria (TMAU). A particular campaign by some community members using the temporary webite RRR (researching for research resources) rrr-tmau.org was behind most of the money raised.

The grant was won by the Monell Chemical Senses Center in 2011 (one of 6 bids) and research was completed in 2014. We understand that the research paper has been completed and put forward for publishing in a medical journal. However this could take a while and so we cannot say when it will be published other than being hopeful it will be anytime in 2015.

Well done to the community for making this research happen.

Links:
funding target is reached (Feb 2011)
Nord Grant awarded to Monell (2012)

Saturday, February 28, 2015

Serious Investors or Philanthropists Needed

Click icon to read Tracy's TMAU story 

"Every day is a fight for survival and for a life that I have never had.... I am a forgotten leper, a fairy tale ogre; isolated, an outcast, unworthy of time, understanding, help or freedom. I beg the medical community as a whole do not allow this lack of awareness, support or advances to continue – nobody deserves this torturous segregation." (http://www.rarediseaseday.org/stories/5093)


Are there any affluent philanthropists or serious investors out there willing to back a promising therapy for Trimethylaminuria?



Wealthy individuals are sought for investment discussions with a trusted, UK-based, biotech company looking to raise capital for continued research into a very promising TMAU therapeutic. This treatment could potentially handle both primary and secondary versions of TMAU. It is also a great opportunity for investors to have a stake in a company actively looking at therapeutics for other disorders and diseases.


Confidentiality would be assured, and any interested parties would be invited to sign a confidentiality agreement before being shown data about the project.


Please e-mail MEBO (maria.delatorre@meboresearch.org or karen.james@meboresearch.org) who will put you into contact immediately with the relevant company.



A Public Charity


A EURORDIS and NORD Member Organization