MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

TMAU Test through MEBO Research

MEBO Research International
TMAU Urine Test

SEE UPDATES HERE
$150 plus
shipping costs

for one test,

$250plus
shipping costs

for 2 tests over time.
TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please..
(supplied with test-kit)

TMAU Test
Results Form

sent via email

For Questions and Answers, see

MEBO's Interactive
Q & A Forum

Test analysis performed in batches of 15 to 20

DATE: 26 MAR 2015
Now on : Batch #14
Samples analyzed since June 2012 : 239
Samples sold for Batch#14 : 21
Current samples received for Batch#14 : 17

BATCH#14 will be shipped to lab on 30 MAR 2015. Lab will send results within 30 days. Test analysis performed in batches of 15 to 20

Sonya's TMAU diet book

One of our group, Sonya McClinton, has written a 'low choline' recipe book. If you buy from Amazon through these links MEBO get a small % at no extra cost to the buyer


Amazon USA
38 sold

Amazon UK
14 sold
Don't have a kindle ? There are details on the right-side of the amazon pages how to download an app for smartphones, PC, or tablet. For Spain/Canada use the Amazon links in the left sidebar

tell others: send these links
Amazon USA : http://goo.gl/iisvYR
Amazon UK : http://goo.gl/mH2ZyN
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 17-DEC-2014:
£ 863.03/GBP
$ 563.00/USD

TOTAL at today's ROE
£0.64/GBP = $1.00/USD

£1,224.17 = $1,908.44

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Upcoming get-togethers

TMAU support group in Ormond Beach, Florida
contact Hilda at hpostell@rocketmail.com

Let us know if you want a meetup listed

Skype Group

International Skype group

Join through skype : username "Jo Jo"
members so far : 71
download skype (free version)
create a free account
Search for skunkhugsj : Make him a contact
Or ask anyone in the group to add you to group

Bi-Weekly Group Calls

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefixGeneral Conferences: normally every other Sunday starting at 2:00pm - 4:30pm Eastern Time.

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phone line can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

MEBO Community Outreach Program

Click here, Scroll down, Click on
"This belongs on CNN"
Cheryl Fields, Ph.D. (ABD)
MEBO Community
Outreach Director
Book uplifting seminars for free.

Click here for details and scroll downHome/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org


Cheryl's CNN campaign

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Friday, March 20, 2015

The MEBO Website New Look

Click on icon

I am most grateful to the MEBO User Experience and Technology Director, Jason, for donating his expertise in the revamping of the MEBO website to give it a beautiful, clean, and modern new look! We now have a new and upgraded form, structure, and appearance to our website.
Biotech Therapy Research

Using Jason's words, he tells us, "The main reasons I did it are to work with the new social sharing tech, make it more readable on mobile, and bring up its Google score. Also it now has Wordpress so it'll be so much easier to update, you can make a page within minutes." What a great asset Jason and his work are for our cause.

Jason took the initiative of offering to volunteer his services yet again, as he has done through the years. It is through his dedication and expertise that MEBO has been successful in "spreading the word" around the world. His technical support in all of MEBO's Annual Conferences has been invaluable to our community. We thank you, Jason!

Investors Sought
María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (Español)
MEBO Brasil - Blog (Portugués)
TMAU Brasil (Portugués)
The MEBO Forum (English), (Español), (Portugués), (Russian, Форум)






SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Please use your credit card to make your donation.

A EURORDIS and NORD Member Organization 

A message from NORD

Thanks to Tracy stepping up and telling her story for RareDisease Day 2015, Trimethylaminuria was represented in this event. We thank you, Tracy, for your contribution to our cause.

“More than 160 people submitted photos & stories to the Handprints Across America™ gallery. By working with Rare Disease Day founder, EURORDIS, our efforts helped to make this a truly global event with hundreds of patient organizations & thousands of events on every continent. Several new countries, including Bolivia, Estonia and Madagascar, participated in Rare Disease Day for the first time.”


Rare Disease Day 2015 Highlight Video
Rare Disease Day 2015 Highlight Video
Rare Disease Day 2015 was our biggest and most impactful yet!
The final 2015 State House Event took place yesterday.  Now that all of the numbers are in, take a look at (and share!) this year's highlight reel & recap:
  • ​Together, we planned and hosted 32 State House Events in capitol buildings across the U.S., up from last year's 12 State House Events
  • Governors in 36 states issued proclamations for "Rare Disease Day"
  • The Senate passed a resolution declaring Feb. 28, 2015 "Rare Disease Day"
  • Nearly 1,500 people and 189 state legislators & staff attended the State House Events, which featured participation from 83 organizations85 patient & caregiver speakers35 state legislative speakers, and 39 medical professional & industry speakers
  • More than 800 partners joined the movement by signing on to the U.S. Rare Disease Day website & combined forces with advocates in 80+ countriesaround the world
  • Rare Disease Day trended on Facebook for the first time
  • More than 160 people submitted photos & stories to the Handprints Across America gallery
  • Millions of people around the world watched this year's video
  • By working with Rare Disease Day founder, EURORDIS, our efforts helped to make this a truly global event with hundreds of patient organizations &thousands of events on every continent. Several new countries, including Bolivia, Estonia and Madagascar, participated in Rare Disease Day for the first time
With all of our efforts, Rare Disease Day continues to grow!  Thank you to everyone who planned and attended events, joined the social media campaign, changed their profile photos, shared infographics, and got involved.
As the official U.S. sponsor of Rare Disease Day, NORD thanks everyone who came together to support this truly community and group effort.  Together, we are strong!
Keep the Momentum Going
You can help keep the positive Rare Disease Day momentum going by urging your representatives to support the Ensuring Access to Clinical Trials Act.  This bipartisan legislation would help more people with rare diseases participate in clinical trials without fear of losing important benefits or health coverage. Learn more & take action as easily as entering your zip code.
Looking Ahead: Rare Disease Day 2016
Planning is already underway!  So far, 27 states have committed to hosting State House Events.  Join us and get involved - send us an email and visit thewebsite in the coming months. 
Rare Disease Day 2016 will take place on Feb. 29, 2016, the rarest of all calendar days.

Thursday, March 19, 2015

TMAU Test Kits available MEBO Meetup Orlando 2015

TMAU Test Kits available MEBO Meetup Orlando 2015


The lab is providing me with extra TMAU Test Kits for me to offer the discounted rate of only $110 per test, plus return shipping cost, only if the samples are not hand delivered to me at the meetup.

This meetup is a great opportunity to meet and befriend other sufferers and to learn symptom-management tips from each other, as well as an opportunity to test for TMAU at a discounted rate. I do hope to meet as many of you as possible there. It will be a very welcoming and inclusive experience. Somehow, we immediately bond as a cohesive group each time we meet!

Please read previous posts in this blog about the MEBO Annual Meetup and Conference 2015.

MEBO TMAU TEST KIT
(Scroll down to see all posts)

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (Español)
MEBO Brasil - Blog (Portugués)
TMAU Brasil (Portugués)
The MEBO Forum (English), (Español), (Portugués), (Russian, Форум)






SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Please use your credit card to make your donation.

A EURORDIS and NORD Member Organization