MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

TMAU Test through MEBO Research

MEBO Research International
TMAU Urine Test

SEE UPDATES HERE
$150 plus
shipping costs

for one test,

$250plus
shipping costs

for 2 tests over time.
TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please..
(supplied with test-kit)

TMAU Test
Results Form

sent via email

For Questions and Answers, see

MEBO's Interactive
Q & A Forum

Test analysis will normally occur in batches of 15 to 20

DATE: 19 SEP 2014
Now on : Batch #12
Samples analyzed since June 2012 : 223
Samples sold for Batch#12 not returned to MEBO : 19
Current samples received for Batch#12 : 6

Will send 15 to 20 samples to the lab for Batch#11.

Sonya's TMAU diet book

One of our group, Sonya McClinton, has written a 'low choline' recipe book. If you buy from Amazon through these links MEBO get a small % at no extra cost to the buyer


Amazon USA
38 sold

Amazon UK
14 sold
Don't have a kindle ? There are details on the right-side of the amazon pages how to download an app for smartphones, PC, or tablet. For Spain/Canada use the Amazon links in the left sidebar

tell others: send these links
Amazon USA : http://goo.gl/iisvYR
Amazon UK : http://goo.gl/mH2ZyN
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 30-AUG-2014:
£ 848.03/GBP
$ 513.00/USD

TOTAL at today's ROE
£0.60/GBP = $1.00/USD

£1,157.08 = $1,920.69

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Upcoming get-togethers

TMAU support group in Ormond Beach, Florida
contact Hilda at hpostell@rocketmail.com

Let us know if you want a meetup listed

Skype Group

International Skype group

Join through skype : username "Jo Jo"
members so far : 71
download skype (free version)
create a free account
Search for skunkhugsj : Make him a contact
Or ask anyone in the group to add you to group

Bi-Weekly Group Calls

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefixGeneral Conferences: normally every other Sunday starting at 2:00pm - 4:30pm Eastern Time.

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phone line can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

MEBO Community Outreach Program

Click here, Scroll down, Click on
"This belongs on CNN"
Cheryl Fields, Ph.D. (ABD)
MEBO Community
Outreach Director
Book uplifting seminars for free.

Click here for details and scroll downHome/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org


Cheryl's CNN campaign

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Diaspora

TOTAL DONATIONS: $267.48 = £159.47 (30AUG14)
1st shipment to Kenya 3JUN14 $92.75/USD
2nd shipment to Ghana 15AUG14 $104.56/USD
SUPPLEMENTS FOR AFRICA DRIVE


MEBO US PAYPAL ACCOUNT


MEBO UK PAYPAL ACCOUNT


Sunday, September 14, 2014

TMAU website and blog run by a TMAU sufferer

Website : trimethylaminuria.com

trimethylaminuria.com is a new website and blog run by a TMAU sufferer. Raising awareness of metabolic malodor conditions is a very important aspect for this disorder community, as researchers, the medical system and the public are almost all unaware of the concept. So it is uplifting to see any new awareness projects appear.

The website also has an accompanying blog
http://trimethylaminuria.com/tmau-blog/

Thursday, September 11, 2014

UK most popular mid-morning TV show looking for TMAU volunteer

UK TV Channel : ITV
Programme : This Morning
Looking for TMAU diagnosed person to appear on show
This would be the 4th TMAU person on the show

UK ITV show 'This Morning' is looking for a TMAU diagnosed person to appear on the show. They have contacted the tmau.org.uk website to ask for a volunteer. This would be the 4th TMAU person to appear on the show, following on from Claire, Karen and Ellie. Raising awareness of metabolic malodor is a vital need for the metabolic malodor community, as both the public and  researchers are still mostly unaware of the concept.

The email to the tmau.org.uk owner said the following :

We are looking for a case study of someone who has been diagnosed with trimethylaminuria and can talk on live TV about how it affects their life. We arrange all travel and can pay a fee. It will be for a Tuesday show over the next few weeks. It would be brilliant if you could help. Thanks!""

adrian.butler@itv.com

Adrian Butler | Newsdesk journalist, This Morning | ITV plc 6th Floor/Studio 8 This
Morning London Television Centre Upper Ground | London | SE1 9LT |
Tel: 020 715 74153

Link to post on tmau.org.uk forum


Saturday, September 6, 2014

Requests for updates on UK TMAU research project

Click icon
MEBO has been receiving requests from sufferers for updates on the first phase of the UK TMAU research since the Medical Research Councils UK Gateway to Research website states that the £358,124 research grant for ‘Therapy for the body and breath malodour disorder Trimethylaminuria (TMAU)’ was awarded for the period of August 13, 2013 through August 15, 2014, Please be advised that our researchers have been working diligently not only to complete this phase of the research, but also to obtain funding to the next phase of this research. They will update us when the time is right.

researchers customarily do not discuss their research...until they have finalized each research phase, at which point they present it in a professional manner in a publication.
An important thing to realize about scientists is that they customarily do not discuss their research, and they really don't like doing so, until they have finalized each research phase, at which point they present it in a professional manner in a publication. It is at this time that they are better equipped to discuss their findings in a substantiated, professional and accurate manner. There is nothing researchers want more than to publish their findings, which empowers them to be able to obtain additional grants to go on to the next phase of the research project. They don't need for us to push them along; it really won't expedite matters any, on the contrary, our questions only take them away from doing their research work.

The scientific method is a very tedious, long and meticulous process, and scientists cannot jump to conclusions or make declarations about their research until the method has been carried out in great detail to its conclusion.
The scientific method is a very tedious, long and meticulous process, and scientists cannot jump to conclusions or make declarations about their research until the method has been carried out in great detail to its conclusion. Therefore, our contacting the researchers asking for updates only serves to distract from their work those who are inspired to work to help us... This is very counterproductive. I know that sufferers are desperate, but persistently contacting researchers that are working to help us asking them to hurry up the process only works against us. We need to be patient, and we need to be grateful that they are researching to help us.

our contacting the researchers asking for updates only serves to distract from their work those who are inspired to work to help us...
Every time they are interrupted from their work by repeated requests for updates, when they've already explained that they cannot give information until their research phase is concluded, they are consequently forced to stop their research work to reiterate their answer yet again to each sufferer who asks. Each of these events only represents that we are annoying those persons who are inspired to help us! This must stop, and sufferers need to stop writing to our current researchers and creating this unfortunate situation. They have already told us that they would be happy to let us know when they publish their findings as soon as their research phase is concluded in a very methodical and well documented manner.

It wasn't too long ago that there was absolutely no formal research taking place on TMAU or any other odor condition that we are aware of. It was only a few years ago that TMAU testing had been discontinued in the US for one whole year. It took MEBO volunteers a great deal of hard work to unite sufferers and experts to promote testing and research again. It will be disadvantageous for us to now interfere with research by continuously approaching our scientists with questions and pressuring them for answers. Please, help in this regard. MEBO will inform our international community as soon as our researchers give us updates.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)




SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


A EURORDIS and NORD Member Organization