MEBO Research is a
NORD Member Organization
See RareConnect

MEBO malodor map

Herbal Hill
Deodorising Products
see this post
Herbal Hill site
Facebook Page

TMAU Test through MEBO Research

MEBO Research International
TMAU Urine Test

$150 plus
shipping costs

for one test,

shipping costs

for 2 tests over time.
Send email to to arrange, AFTER filling out Requisition Form, please..
(supplied with test-kit)

Results Form

sent via email

For Questions and Answers, see

MEBO's Interactive
Q & A Forum

Test analysis performed in batches of 15 to 20

Now on : Temporary suspension
Samples analyzed since June 2012 : 287

Test analysis performed in batches of 15 to 20

Sonya's TMAU diet book

One of our group, Sonya McClinton, has written a 'low choline' recipe book. If you buy from Amazon through these links MEBO get a small % at no extra cost to the buyer

Amazon USA
38 sold

Amazon UK
14 sold
Don't have a kindle ? There are details on the right-side of the amazon pages how to download an app for smartphones, PC, or tablet. For Spain/Canada use the Amazon links in the left sidebar

tell others: send these links
Amazon USA :
Amazon UK :

£ 913.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.6537/GBP = $1.00/USD

£1,281.23 = $1,948.81



Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Popular Posts (last 30 days)

Upcoming get-togethers

TMAU support group in Ormond Beach, Florida
contact Hilda at

Let us know if you want a meetup listed

Skype Group

International Skype group

Join through skype : username "Jo Jo"
members so far : 71
download skype (free version)
create a free account
Search for skunkhugsj : Make him a contact
Or ask anyone in the group to add you to group

Bi-Weekly Group Calls

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefixGeneral Conferences: normally every other Sunday starting at 2:00pm - 4:30pm Eastern Time.

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phone line can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

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Blog Archive

Sunday, November 22, 2015

Herbal Hill Checklist for Body Odour

Karen MEBO Research
A word from Karen, UK Public Relations Director MEBO Research, in conjunction with the founder of Herbal Hill


The founder of Herbal Hills has devised a checklist to help those who are new to the community.

A starter checklist of tests for those with body odour that appears to have come ‘from nowhere’:

1. TMAU test (MUST be choline loaded: ie. 2 eggs + a can of baked beans the night before the test. Take first morning urine.). This should tell you whether you have TMAU1 or TMAU2. TMAU1 is genetic, and a low choline diet should be immediately started. TMAU2 is non-genetic. The underlying cause should be investigated (it could be any number of things, see below). See HOW TO GET TESTED HERE: testing instructions (MEBO TMAU Test Program has been suspended until January 2016 due to construction. Anyone interested can fill out the requisition form to go on a waitlist)

orphanet TMAU test list

If you are negative or diagnosed as TMAU2 on the TMAU urine test, your next steps should be (in no particular order):

2. Genova Diagnostics Complete GI test with parasitology [or other similar stool test]. Have a look on the Genova website, find a nutritionist/doctor in your area, and order the test. Expensive (approx £250 last we heard), but worth it. This should tell you whether you have a gut dysbiosis, as it profiles your gut bacteria, fungi and parasites.
Herbal Hill website
Following this test, if you have been shown to have a significant issue with bacterial dysbiosis, fungi or parasites, work with your doctor/nutritionist to get rid, and re-balance the gut!

3. Colonoscopy for potential bowel prolapse. We’ve heard of several cases in which bowel prolapse has been thought to be an underlying cause of body odour.

4. Liver and kidney check – take blood tests to ensure your kidney and liver is functioning normally. Any disease or damage to the liver or kidneys can reduce the ability of your detoxification system to work at its best. If there is an ammonia smell particularly, the liver should be suspected. Also, ask your doctor to check for a Urea cycle disorder if the ammonia smell comes mainly after eating protein/meat meals.

5. Coeliac disease blood test. We’ve had many anecdotal instances of those with underlying coeliac disease who say that 1-2 days after eating wheat/gluten, they experience a ‘fecal’ body odour. So, it is worth checking out.

6. Constipation – see your doctor for the best way to treat this. Many people find Apple Cider vinegar capsules and a 500mg capsule of magnesium before bedtime can help relieve symptoms of mild constipation. If the constipation is very bad or longstanding, you should see your doctor immediately, and we’d heavily suggest a colonoscopy to check for potential issues in the gut.

7. Diet – an easy way to back check whether you have an issue with a single food, is to do an ‘elimination diet’. Some people claim that eliminating a single food (eg. Gluten for coeliacs) can stop their body odour in its tracks. We've heard people say restricting the amount of protein and/or dairy foods particularly beneficial, but we’d advise seeing a doctor or nutritionist before embarking on any sort of restrictive diet, as finding the underlying cause is important
(eg. If you have coeliac disease, lactose intolerance or issues with protein digestion, you really should know why, and discover how best to treat for whatever condition you have).

8. Skin fungal issue. Particularly if there is itching and/or rash, and particularly if the itching and/or rash is in the groin, underarms and/or feet. Fungal issues on the skin can be very odorous. A dermatologist is the best one to check for this. We've heard people say that some skin fungal issues do not show any of the usual itching/rash symptoms. There are some over-the-counter antifungals which may be helpful, and Herbal Hill has some effective combination anti-fungals which they will be selling soon on

Other: Herbal Hill sells some very strong natural deodorants which some people may find useful ( ). Also we hear that products with some very effective natural anti-fungals will be selling on this site soon.

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Thursday, November 12, 2015

VICTORY: NORD's patient assistance free drug program

In the fight against rare diseases, YOU are a hero!
Parents Thank NORD Organization Members for Saving Daughter’s Life

A MESSAGE FROM: Baby Jenna's Mom
Through NORD

In the fight against rare diseases, YOU are a hero!

Dear Friend,

This year you ensured that patients and families were not alone in battling their rare diseases. You joined the fight and helped them to receive an accurate diagnosis, fund research, connect with experts, find clinical trials and access new treatment. Your donation made it all possible. You did this...

Learn more about the impact that you made possible;


Through NORD's patient assistance free drug program, we provided life-saving medication to baby Jenna.

"We just made a donation to NORD. Your organization helped save our daughter's life when she was a baby." - Jenna's Mom
Read More About Jenna's Story >

Let's keep fighting!

Alone we are rare. Together we are strong. (TM)

Today, our MEBO community helped Jenna, and perhaps tomorrow, the NORD and EURORDIS organization members may team up to help the MEBO community. I love their logo, "Alone we are rare. Together we are strong." Thanks everyone for your help.


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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A EURORDIS and NORD Member Organization

Wednesday, November 11, 2015

New RareConnect Discussion Group

A MESSAGE FROM ROB PLETICHA, RareConnect Project Manager:

RareConnect Discussion Groups have now launched!  
The Discussion Groups will provide a platform to discuss transversal non-disease-specific issues related to living with a rare disease.

Thank you for your continued interest in EURORDIS’ activities,


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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A EURORDIS and NORD Member Organization