MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

TMAU Test through MEBO Research

MEBO Research International
TMAU Urine Test

SEE UPDATES HERE
$150 plus
shipping costs

for one test,

$250plus
shipping costs

for 2 tests over time.
TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please..
(supplied with test-kit)

TMAU Test
Results Form

sent via email

For Questions and Answers, see

MEBO's Interactive
Q & A Forum

Test analysis performed in batches of 15 to 20

DATE: 22 JAN 2015
Now on : Batch #14
Samples analyzed since June 2012 : 239
Samples sold for Batch#14 : 14
Current samples received for Batch#14 : 3

BATCH#13 with 15 samples received by lab on 7JAN15. Test analysis performed in batches of 15 to 20

Sonya's TMAU diet book

One of our group, Sonya McClinton, has written a 'low choline' recipe book. If you buy from Amazon through these links MEBO get a small % at no extra cost to the buyer


Amazon USA
38 sold

Amazon UK
14 sold
Don't have a kindle ? There are details on the right-side of the amazon pages how to download an app for smartphones, PC, or tablet. For Spain/Canada use the Amazon links in the left sidebar

tell others: send these links
Amazon USA : http://goo.gl/iisvYR
Amazon UK : http://goo.gl/mH2ZyN
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 17-DEC-2014:
£ 863.03/GBP
$ 563.00/USD

TOTAL at today's ROE
£0.64/GBP = $1.00/USD

£1,224.17 = $1,908.44

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Upcoming get-togethers

TMAU support group in Ormond Beach, Florida
contact Hilda at hpostell@rocketmail.com

Let us know if you want a meetup listed

Skype Group

International Skype group

Join through skype : username "Jo Jo"
members so far : 71
download skype (free version)
create a free account
Search for skunkhugsj : Make him a contact
Or ask anyone in the group to add you to group

Bi-Weekly Group Calls

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefixGeneral Conferences: normally every other Sunday starting at 2:00pm - 4:30pm Eastern Time.

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phone line can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

MEBO Community Outreach Program

Click here, Scroll down, Click on
"This belongs on CNN"
Cheryl Fields, Ph.D. (ABD)
MEBO Community
Outreach Director
Book uplifting seminars for free.

Click here for details and scroll downHome/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org


Cheryl's CNN campaign

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Friday, January 23, 2015

TMAU testimonial for Rare Disease Day project

A young lady has written a testimonial about living with trimethylaminuria (TMAU) for a Rare Disease Day project on Flcikr created by rareconnect.org. The image that goes with the story is very striking and eye-catching. Perhaps others can also create images that get across points quickly to the public about TMAU or other systemic body odors/halitosis. You can read her article on the Flickr website.

 Click on the image to read the article on Flickr

Link to the article : TMAU testimony on Flickr Rare Disease Project
Link : rareconnect.org TMAU group
Link : Rare Disease Day


Tuesday, January 20, 2015

Raise Awareness on Rare Disease Day 2015!

Click on icon
Are you planning an awareness raising event on or around Rare Disease Day 2015?

You can now Post your Event on the official Rare Disease Day website!

We list all events via patient organisations or medical professionals on our world map and country and region pages!

Don't forget to upload photos and videos so the world can see how you contributed to the global movement! This year, there is also a new feature where you can upload your event programme.

Are you having technical difficulties? Watch the recording of our informative interactive webinar on How to use the Rare Disease Day Website in preparation for Rare Disease Day 2015 here!


Click & scroll down
Rare Disease Day is open to everyone! Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities - the more people involved the better! There are many ways to participate. Let's join our efforts to give hope to rare disease patients all over the world! Don’t forget you can also:
Click on icon: participation around the world. Look for your country.
Please represent MEBO around the world to raise awareness in whichever way you like with the many options offered above. We appreciate the invaluable work EURORDIS and NORD have done for all rare disease patients and organizations throughout the year. We are honored and proud to be members of these organizations.

Maria


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)




A EURORDIS and NORD Member Organization 

Wednesday, December 3, 2014

'Rare Disease-Detection, Treatment, Care and Research'

Click & scroll down
‘Expert Opinion on Orphan Drugs:
Rare Disease-Detection,
Treatment, Care and Research’

As a EURORDIS Member, the MEBO community can access a special edition of the journal 'Expert Opinion on Orphan Drugs: Rare Disease-Detection, Treatment, Care and Research' for free until 26 December. As the EURORDIS Junior Communications Manager, tells MEBO in an email,


Please use the following link to access the journal online:


This themed issue has been organised in partnership with us, EURORDIS, and NORD. The purpose of this themed issue is to improve the scientific community’s understanding of the important issues surrounding rare diseases and the impact they have on the lives of patients. Our CEO, Yann Le Cam has contributed an article entitled ‘A hidden priority: the paradox of rarity (EURORDIS perspective)’ to the edition, available at the above link.

The issue includes pieces covering the importance of raising awareness and sharing family experiences on coping and caring for a child affected by a complex rare disease; creating patient communities; promoting policies and support in favour of research on rare and genetic diseases; promoting better standards of diagnosis and care; and easier access to cross-border care for patients affected by rare diseases.

For a limited time, you can access content from this themed issue for Free below

PLEASE NOTE THESE ARTICLES ARE FREE TO ACCESS UNTIL DECEMBER 26TH 2014

Read More:http://informahealthcare.com/page/free_access_EODD

We appreciate the invaluable work EURORDIS and NORD have done for all rare disease patients and organizations throughout the year. We are proud to be members of these organizations.

Maria


María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)





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A EURORDIS and NORD Member Organization