IN SURVEY STUDIES
On January 11, 2011, the American Psychiatric Association revised and updated the DSM-5 Development category of Olfactory Reference Syndrome, as noted on their website. This online page was copyrighted in 2012 with these latest revisions. The most significant highlights of these changes are the following declarations:
The preoccupations are not restricted to the symptoms of another mental disorder (e.g., the delusions of Schizophrenia or another Psychotic Disorder)...
There appears to be some overlap with delusional disorder, social phobia, body dysmorphic disorder, OCD, and hypochondriasis, but ORS appears to have important differences from all of these disorders.
ORS’s current classification is problematic, as this syndrome appears to characterize a distinct and suffering group of people who may be misdiagnosed or unsuccessfully treated because ORS is not clearly identified in DSM...Including ORS in an Appendix would potentially stimulate further systematic research, using specified diagnostic criteria.2012 American Psychiatric Association
In an effort to support our upcoming testing and research programs, MEBO is currently going to great lengths to set up the required privacy protection of participants by establishing an Institutional Review Board (IRB), also known as an Independent Ethics Committee (IEC), or Ethical Review Board (ERB), that will be formally designated to approve, monitor, and review biomedical and behavioral research involving humans. We are also in consultation with a HIPAA attorney, (aka solicitor in UK) to assure that we will have taken the proper legal measures to ensure the protection of the study participants. See the Health Insurance Portability and Accountability Act (HIPAA) as explained by the U.S. Department of Health & Human Services.
So all sufferers from around the world need to ask themselves, do I want to remain a helpless victim, or do I want to empower myself to change the course of my life? Could I be a part of the solution for myself, my children, and their children, so that no one else will ever have to suffer as all persons with this condition have suffered throughout history.
More information about MEBO's survery studies will be forthcoming very soon. We hope to make a difference. Please stay tuned.
María de la Torre
Founder and Executive Director
A Public Charity
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