At the end of each year, I like to “think outloud” to our community, and I write a post about what MEBO has been involved in throughout the year, and where we are going in the future, while always being open to new possibility as we go on our journey. Along with bringing to fruition in 2012 all the current programs launched in 2011, my primary focus for 2012 is to upgrade the company registered in England and Wales to charity status.
MEBO US), and the not-for-profit Limited by Guarantee Company aspiring to become a Charity is registered in England and Wales as MEBO Research (herein referred to as MEBO UK).
MEBO Research would like to extend our most sincere gratitude to all those who have been instrumental in the operations and growth of our programs, including but not limited to those persons noted below. Thank you!
- Held MEBO US Second Annual Meetup in Washington DC on April 9th and 10th.
- a. Dr. Cheryl Field’s Disability Benefits Presentation at meetup via conference call
- b. Dr. Elizabeth Shephard’s TMAU/FMO3 slide show presentation on an overview of TMAU in relation to the genetic deficiency of FMO3 enzyme
- c. Presentation from the literature Dr. John Cashman’s provided for the meetup and his subsequent interview for MEBO’s blog
- a. has written numerous grant proposals for MEBO,
- b. Taken the initiative to approach Dr. Michael Phillips of Menssana Research to launch the Alveolar Breath Research Study in the 1st quarter of 2012. Dr. Phillips has donated the use of 3 instruments without charge to MEBO Research to be shipped for a period of one year around the world, initially in the United States, England, and Australia.
This study involves collecting alveolar breath samples to detect volatile organic compounds (VOCs) originating from the lungs as opposed to oral cavity, to identify up to 200 VOCs that may be or may not be producing body odor and halitosis conditions, as noted on the chart of the above mentioned post.
This research seeks to identify peaks in VOC levels in sufferers compared to a control group under the monitoring and review of one or more institutional review boards (IRB), also known as ethical review board (ERB). See latest Update post.
- c. Mike also created the MEBO Petition that has received over 350 signatures from persons in 31 countries. This petition will be used in MEBO’s International Raising Awareness Campaign with medical, political, and educational institutions around the world as well as for grant-seeking efforts. Many signatories have chosen to remain private (removing the checkmark by clicking the box that says, “Display my signature publicly”), and their signatures are not displayed online or found with a search engine. This is truly an international effort, as we have already received signatures from sufferers, family members and supporters of 31 countries, and the list keeps growing. We hope to receive many more signatures until we have representation from every country in the world.
Participation in this free of charge program is encouraged. By doing so, you would have the opportunity to proactively help acquire data for this analytic program that would allow for a better understanding of the causes and triggers of odor.
- a. TMAU Testing with Cleveland Clinic (See #4 above)
- b. Alveolar Breath Test and Research Study with Menssana Research (See #5 above)