Monday, February 8, 2010

MeBO Research First Year Anniversary : February 5th, 2010

February 5, 2010 saw the first anniversary of MEBO Research, registered in England as a limited non-profit company. It hopes to become a charity, and it would need £5000 in assets to register as a charity in England. MeBO sees itself as a patient advocacy group on behalf of systemic body odor sufferers particularly by raising awareness and promoting research.

COMPANY INFORMATION
It has been a busy year in 2009, getting the paperwork done correctly to establish this nonprofit organization. Nevertheless, it was deemed important to get the first 'special forces' study going, and this was started with the help of Biolab Medical Unit in London. The MeBO-Biolab Gut Dysbiosis Study was begun, with the volunteers kindly paying for their own tests. So far 5 results have been returned with more pending, and more volunteers applying to be tested. Part of the objective of this study is to encourage professional researchers to take a note of the results and perhaps give them ideas for research, as well as the study being useful in itself to each volunteer and other members of our community as patterns emerge from the results.

For the 2nd year, MeBO switched to a new 'official address' for £47 (per year), since the old one was more costly. Last year, Maria paid £89 from her own money for the address, but the renewal for the year 2010 for £47 was paid with the funds donated by the community, for which we are very grateful. A yearly address is needed to keep the company in proper legal standings.

Old address (2009):
Minshull House
Stockport, SK4 2LP
United Kingdom
MEBO Research's new address is:
145-157 St. John StreetLondon EC1V 4PY
England
UK 0800 0588015 / US 786 228-6880

So far £530/$862 has been raised, for which we are very grateful. One of the aims in 2010 is to reach £5000 goal to become a charity and hopefully register in the U.S. as well. However, if community opportunities arise, it may be deemed important to fund MeBO's causes too, as we invested £125 in the MEBO-Biolab Gut Dysbiosis Study, and an additional £902 needed to cover the cost of these tests were donated by the 5 volunteers for their own respective tests.

Donations will also be used for the upcoming International Body Odor and Halitosis Webinar Series, which will benefit the whole community for a long time to come; it will be free of charge to up to 1,000 attendees worldwide during each presentation. This webinar will cost MeBO £100 a month for the duration of the Series.


DONATIONS FOR THIS WEBINAR SERIES WOULD BE GREATLY APPRECIATED.
The more funds raised, the longer we can receive valuable presentations from the experts and thus increase our opportunity to fund raise for research grants and to raise awareness and understanding of our condition.
PLEASE HELP!
Your donations would be greatly appreciated by the whole community.

María de la Torre

Raised: £530/$862
Contribution to Study: £125/$203
Companies House Registered Office Address fee: £47/$73
Current balance: £358/$560
updated 08FEB10




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Regular FREE (long distance call plan) General and Women-only Phone Conferences

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefix
General Conferences: normally every other Sunday at 2pm EDT.
Next call : Sunday February 21th : 2pm EDT

Scroll down for next Women's conference
Women's Conferences: normally every other Thursday 8.30pm EDT. Next call: October 29th at 8:30p.m. EDT


Arranged by the leaders of the bodyodorsupport.com forum

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier


Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

Meet-up/Support group contacts

UK : Arun Nagrath: arunnagrath@hotmail.com
Miami : Maria: mpdela1@gmail.com

Action plans

Write an essay on your odor problem for Richards anthology project
contact your Senator about blood-borne BO/halitosis
write to 'the Doctors' TV show
contact the DrHoffman show on WOR710
tell the Office of Rare Diseases about your problem
try the asparagus urine test
Fecal Body Odor Volunteer for media appearances ?
Politicians ?
Ask an expert if they will put up a Q&A section on their websites like Emory have

suggestions

Thinktank

Bluesky ideas to promote thought:

PTC124(Ataluren, or similar) for primary TMAU due to nonsense mutations
Genetically modified probiotics enriched with FMO3 ?
Trimethylamine strip test paper for daily urine testing? (possibly used in the fish industry ?)
BO&Halitosis research center
BO&Halitosis research fund
Can FMO enzyme be induced in a helpful manner ?
Ask an expert if they will put up a Q&A section on their websites like Emory have
BO&Halitosis 'rehab' retreat (?)
TMAU cookbook/advice book
Employ an expert to do the most thorough choline list
Employ Body odor/halitosis expert(s) (?)
Encourage breath-analysis manufacturers to make portable handy analyzers for metabolic odor problems
TMA urine dipstick test
Is trimethylamine an FMO3 inhibitor ?
Campaign : add TMAU to the newborn screening program
Orphan drug program

Send in your ideas or post them on the forums: Contact experts