UK : 
EU : 
Canada 
Spain 
March 23-24 : 
Tomorrow the Office of Rare Diseases will be hosting a workshop about configuring a federated rare disease patient registry internet database. The conference will last 2 days.
ORD 11-12 January Patients Registeries Workshop
Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories and Clinical Data
Please keep this very valuable cause alive.
"WE ARE PROUD AND PROACTIVE!"
"Alone we are rare, together we are strong!"
"Alone we are rare, together we are strong!"
Sunday, January 10, 2010
NORD rare diseases database conference 11-12th January
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