Wednesday, January 13, 2010

Nashville update : Webinar and Conference room provisional plans


Donations needed for Conference Room and Webinar

This March 2010 sees the inauguration of the online community Body Odor and Halitosis Conference and Webinar to be held in Nashville Embassy Suites Airport Hotel on March 20th and 21st. Originally, it was planned as just a meetup amongst community members, but now it hopes to be both a meetup and a conference, with the conference being in the form of a webinar, so that experts can speak from their homes, and so the online community can watch the presentation videos and communicate in text format from anywhere in the world.

Invitations to TMAU/FMO3 experts have been sent and so far a renown geneticist expert has said he would be happy to help if his schedule permits, and another 2 have said they would be giving a joint lecture on FMO3 genetics and best practice for coping with TMAU. The expert overseeing the MeBO-Biolab Gut Dysbiosis Study has also offered to do a presentation.

Conference room arrangements :
Pending the numbers who will attend this Nashville Webinar, it has not yet been decided if the meetings will be held in the Governors Suite, or whether one of the larger hotel conference rooms may be needed. The cost of a any of these rooms may cost from $150 to $500 a day depending on the room size. This will be determined later once the number of attendees is more accurately established. Whether to book a conference room for 2 days is also still to be decided, depending on factors such as whether the attendees wish 2 days, cost, and the potential numbers of speakers. At the moment we are proceeding as if the webinar will last one and a half or two days. After all, it was initially intended to be a meetup to promote camaraderie and support, and for attendees to also have the opportunity to have fun together.


Webinar arrangements :
The webinar format will allow experts who cannot attend to speak from their homes via a webcam and microphone (via a TV or monitor) to the attendees in the conference room and to those online to also watch in their own computers. One popular body odor & halitosis phone-conference in the US had around 80 callers about a year ago; therefore, the webinar arrangements will be based on the possibility of over 100 watching via the internet. Nonetheless, to ensure no-one is left out, it will probably be based on 500 watching or even more.

Meanwhile the group in Nashville will be watching from the conference room and will be able to ask questions to the speaker during the Q&A session after each presentation. Those on the internet will provisionally communicate their questions and comments via text chat or email.

We have yet to find the program we will need to do this, but it will probably cost us between $50-$100 (or more) for the shortest subscription (one month). The viewers will be able to watch for free, though donations will be accepted. One candidate program is dimdim webinar but it has not yet been determined as other possibilities will be explored. Dimdim uses flashplayer and can be watched without the need to download anything. We will probably do a trial run of a webinar in late February/early March so that anyone interested may join to get the hang of it. It's hoped the Nashville 2010 webinar will encourage future webinars.

Things we think we will need for the conference room :
  • A table (to put the TV/Monitor on)
  • A wireless mic (so the host and those in the room can speak to the speakers)
  • Possibly sound speakers
  • A TV (if it has a computer monitor socket) or monitor
  • A laptop (probably 2)

Webinar program basic needs :
  • 500-1000 viewer capacity
  • 3,4, or 5 cameras and mics enabled (maybe 2 minimum)
  • Can record video (with speakers permission. Any permitted video would be freely available on the blog and MeBO website. No sufferer wouild appear wihtout permission)

Donations :

For the above objective to come to fruition, it was suggested that anyone interested may donate to a ring fence 'Webinar Fund'. The proceeds of this Fund will be used exclusively for the rooms used specifically for the conference and the technical equipment used.

The easiest way to donate is to go to your paypal account and send money as a 'gift' to :







webinar@meboresearch.com (send as a gift)

Other donation avenues may also be used; and to do so, you may contact María at, maria@meboresearch.com to make those arrangements.




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1 comments:

mpdela said...

Anonymous, I must say that I have felt the same, especially initially, as I believe it to be so much easier to organize without a webinar and more relaxing a process. However, when I think of all the sufferers from around the world who may never be able to join us in a meetup, and when so many have asked we invite experts so they can figure out how to reduce their odor, I took the more difficult road. By doing a one day webinar, all sufferers from around the world could join in and be a part of it. We will still have Friday and Saturday evenings at the 2-hour Governor’s Reception followed by dinner and Sunday to bond as a group in a traditional meetup style. We will leave our meetup with a heightened sense of being an close-knit international community of sufferers, with a stronger sense of unity between experts and sufferers, and hopefully with greater knowledge.
María

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Regular FREE (long distance call plan) General and Women-only Phone Conferences

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefix
General Conferences: normally every other Sunday at 2pm EDT.
Next call : Sunday February 21th : 2pm EDT

Scroll down for next Women's conference
Women's Conferences: normally every other Thursday 8.30pm EDT. Next call: October 29th at 8:30p.m. EDT


Arranged by the leaders of the bodyodorsupport.com forum

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier


Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

Meet-up/Support group contacts

UK : Arun Nagrath: arunnagrath@hotmail.com
Miami : Maria: mpdela1@gmail.com

Action plans

Write an essay on your odor problem for Richards anthology project
contact your Senator about blood-borne BO/halitosis
write to 'the Doctors' TV show
contact the DrHoffman show on WOR710
tell the Office of Rare Diseases about your problem
try the asparagus urine test
Fecal Body Odor Volunteer for media appearances ?
Politicians ?
Ask an expert if they will put up a Q&A section on their websites like Emory have

suggestions

Thinktank

Bluesky ideas to promote thought:

PTC124(Ataluren, or similar) for primary TMAU due to nonsense mutations
Genetically modified probiotics enriched with FMO3 ?
Trimethylamine strip test paper for daily urine testing? (possibly used in the fish industry ?)
BO&Halitosis research center
BO&Halitosis research fund
Can FMO enzyme be induced in a helpful manner ?
Ask an expert if they will put up a Q&A section on their websites like Emory have
BO&Halitosis 'rehab' retreat (?)
TMAU cookbook/advice book
Employ an expert to do the most thorough choline list
Employ Body odor/halitosis expert(s) (?)
Encourage breath-analysis manufacturers to make portable handy analyzers for metabolic odor problems
TMA urine dipstick test
Is trimethylamine an FMO3 inhibitor ?
Campaign : add TMAU to the newborn screening program
Orphan drug program

Send in your ideas or post them on the forums: Contact experts