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NORD TMAU GRANT (one award),
funded by patient group, Trimethylaminuria Foundation,
was awarded to recipient announcement:
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Monell Chemical Senses Center
University City Science Center
Philadelphia, PA
“Revisiting TMAU Through Exome Sequencing”

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Friday, November 14, 2008

Arkansas Children's Hospital will now allow TMAU urine testing direct for $126 (via a Doctor)

The Arkansas Children’s Hospital Lab is now accepting adult and children's urine samples for TMAU testing sent directly to them, as opposed to having to send them first to the Mayo Clinic. This must be collected through your Physician or a lab referred by a Physician. Any Physician can order this test by calling this number for additional instructions, at:

Metabolic Genetics Lab
Arkansas Children's Hospital
501-364-1311

Certain insurance companies, like BC-BS, have paid for the test which currently costs $126.35. You may want to check with your insurance company to see if they will pay or how to appeal if denied. If denied PLEASE appeal - for everyone’s sake. The majority of appeals are usually approved, and by appealing, we are showing the demand for this test.

Possibly a way to get tested via Arkansas is to take information about TMAU to your MD, including the request papers from the ACH website.

Arkansas Childrens Hospital webpage with requisition form for TMAU urine test
Arkansas Childrens Hospital PDF document Requisition Form and information on their TMAU urine test

Additional information will be forthcoming soon.

As mentioned in our post, Your MD can do the TMAU urine test via the Mayo Clinic test service, the Mayo Clinic is accepting urine samples for TMAU testing only with your Physician’s written order for the Mnemonic Test WILD105 for the cost of $144.20. They then forward the sample to the Arkansas Children’s Hospital Lab where it is tested. The instructions of how to prepare the specimen for temperature requirements and transport method is also included in this post.

If you should happen to be near a Mayo Clinic facility and wish to use their services as well, you may also do so also with a Physician referral. You would need to call them in advance and make the necessary arrangements for testing and billing at 800-533-1710 or 507-266-5700, as noted in the post.

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