Friday, September 5, 2008

Update 3 on the UK self-testing TMAU (urine test) saga

Latest:
Emed have said by email they would act as 'referrer' for the TMAU urine test via TDL (the doctors laboratory). That would make the price of the TMAU urine test £160 + £20 annual membership of Emed + £15 Emed 'consultation' charge. A separate post will be done about Emed later. Unexpected procedural problems cannot be predicted at the moment, so unfortunately anyone choosing this route does so as a pioneer.

Presumed procedure would be like:
Join Emed (£20)
Tell them you want to do the TMAU urine test via TDL (£15 + £160 for test)
They contact TDL who send a kit out.
Presumably there is some sort of proof that TDL need that a Dr ordered it and this goes with the kit on return (?).

An important remaining issue is the testing procedure of TDLs TMAU urine test. They have been emailed about this and you will be updated once they reply.

The 'sample code' on the TDL site lists the TMAU urine test as being 'PU', which they list as meaning :

30ml aliquot from a 24-hour urine collection with 10ml of 0.1N hydrochloric acid added 
– state total volume
http://www.tdlpathology.com TMAU urine test page
http://www.tdlpathology.com sample code page

This is the same supplier that Medichecks use.

If anyone has any better ways to enable direct testing, please let us know




Related Posts by Categories




0 comments:

Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Search This Blog

Loading...

Latest comments

Latest posts

Get daily update by email

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email. Please click on the verification link on the email. If you do not receive an email, please check your spam folder.

 Subscribe in a reader

Regular FREE (long distance call plan) General and Women-only Phone Conferences

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefix
General Conferences: normally every other Sunday at 2pm EDT.
Next call : Sunday February 21th : 2pm EDT

Scroll down for next Women's conference
Women's Conferences: normally every other Thursday 8.30pm EDT. Next call: October 29th at 8:30p.m. EDT


Arranged by the leaders of the bodyodorsupport.com forum

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier


Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

Meet-up/Support group contacts

UK : Arun Nagrath: arunnagrath@hotmail.com
Miami : Maria: mpdela1@gmail.com

Action plans

Write an essay on your odor problem for Richards anthology project
contact your Senator about blood-borne BO/halitosis
write to 'the Doctors' TV show
contact the DrHoffman show on WOR710
tell the Office of Rare Diseases about your problem
try the asparagus urine test
Fecal Body Odor Volunteer for media appearances ?
Politicians ?
Ask an expert if they will put up a Q&A section on their websites like Emory have

suggestions

Thinktank

Bluesky ideas to promote thought:

PTC124(Ataluren, or similar) for primary TMAU due to nonsense mutations
Genetically modified probiotics enriched with FMO3 ?
Trimethylamine strip test paper for daily urine testing? (possibly used in the fish industry ?)
BO&Halitosis research center
BO&Halitosis research fund
Can FMO enzyme be induced in a helpful manner ?
Ask an expert if they will put up a Q&A section on their websites like Emory have
BO&Halitosis 'rehab' retreat (?)
TMAU cookbook/advice book
Employ an expert to do the most thorough choline list
Employ Body odor/halitosis expert(s) (?)
Encourage breath-analysis manufacturers to make portable handy analyzers for metabolic odor problems
TMA urine dipstick test
Is trimethylamine an FMO3 inhibitor ?
Campaign : add TMAU to the newborn screening program
Orphan drug program

Send in your ideas or post them on the forums: Contact experts