Tuesday, July 22, 2008

Your MD can do the TMAU urine test via the Mayo Clinic test service

Note: Your MD can alternatively send a sample direct to the Arkansas Lab for a trimethylaminuria urine test

Important : The Trimethylaminuria urine test is a challenge test. A dose of choline should be taken. It is currently unclear how the Mayo clinic advise the use of choline in the test.

The Mayo Clinic accepts urine samples for TMAU testing only with your Physician's written orders
for the Mnemonic Test WILD105, for the cost of $144.20. As per the Customer Service Lead at the Mayo Clinic instructions, please see their website for additional information, “Please utilize our Mayo Medical Laboratories website at http://www.mayomedicallaboratories.com/. This site will guide you in getting a specimen to use for testing. If you have further questions please call 800 533 1710”.

The Mayo Clinic also faxed us the form below for us to print and give to our physician so that he/she prescribe the testing procedure; this form includes instructions on how to handle and ship the specimen. We may then mail the physician’s order and the urine sample to:

The Mayo Clinic Medical Laboratories,
Superior Drive Support Center
3050 Superior Drive NW
Rochester, MN 55901

The Mayo Clinic test page : http://www.mayomedicallaboratories.com/test-catalog/Overview/90544

Customer Service staffed wtih 24-hour personalized service:
http://www.mayomedicallaboratories.com/customer-service/index.html

United States, Canada
· 800.533.1710
· 507.266.5700
· mml@mayo.edu <mml@mayo.edu>
International
· 507.266.5700
· mmlglobal@mayo.edu <mmlglobal@mayo.edu>


Copy and paste form below with full instructions for your physician and lab

Mnemonic -
WILD105

Mayo Unit Code -
90544

Fee -
$ 144.2

Test Name -
TRIMETHYLAMINE (FISH ODOR), URINE

CPT Codes -
82491, 80500

Methodology -
GC Gas Chromatography

Test Notes -
Samples must be shipped Monday - Wednesday.

Referral Lab -
ARKANSAS CHILDRENS HOSPITAL

Transport Method and Temperature -
15-20 ml RANDOM FROZEN- URINE and/or aliquot of post-load speciment.
Adjust urine to pH -5.0 using a small volume of concentrated HCl.
Fill several GLASS tubes (glass screw-cap tubes or glass red-top vacutainer tubes)
HALF FULL to allow for expansion of the specimen due to freezing.
FREEZE, CUSHION WELL TO AVOID BREAKAGE.
TRIMETHYLAMINE IS A HIGHLY VOLATILE COMPOUND AND WILL BE LOST FROM THE SPECIMEN IF THESE INSTRUCTIONS ARE NOT FOLLOWED.
SPECIMENS SHIPPED IN PLASTIC OR NOT FROZEN WILL BE REJECTED.




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Regular FREE (long distance call plan) General and Women-only Phone Conferences

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefix
General Conferences: normally every other Sunday at 2pm EDT.
Next call : Sunday February 21th : 2pm EDT

Scroll down for next Women's conference
Women's Conferences: normally every other Thursday 8.30pm EDT. Next call: October 29th at 8:30p.m. EDT


Arranged by the leaders of the bodyodorsupport.com forum

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier


Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

Meet-up/Support group contacts

UK : Arun Nagrath: arunnagrath@hotmail.com
Miami : Maria: mpdela1@gmail.com

Action plans

Write an essay on your odor problem for Richards anthology project
contact your Senator about blood-borne BO/halitosis
write to 'the Doctors' TV show
contact the DrHoffman show on WOR710
tell the Office of Rare Diseases about your problem
try the asparagus urine test
Fecal Body Odor Volunteer for media appearances ?
Politicians ?
Ask an expert if they will put up a Q&A section on their websites like Emory have

suggestions

Thinktank

Bluesky ideas to promote thought:

PTC124(Ataluren, or similar) for primary TMAU due to nonsense mutations
Genetically modified probiotics enriched with FMO3 ?
Trimethylamine strip test paper for daily urine testing? (possibly used in the fish industry ?)
BO&Halitosis research center
BO&Halitosis research fund
Can FMO enzyme be induced in a helpful manner ?
Ask an expert if they will put up a Q&A section on their websites like Emory have
BO&Halitosis 'rehab' retreat (?)
TMAU cookbook/advice book
Employ an expert to do the most thorough choline list
Employ Body odor/halitosis expert(s) (?)
Encourage breath-analysis manufacturers to make portable handy analyzers for metabolic odor problems
TMA urine dipstick test
Is trimethylamine an FMO3 inhibitor ?
Campaign : add TMAU to the newborn screening program
Orphan drug program

Send in your ideas or post them on the forums: Contact experts