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TMAU Test through MEBO Research

MEBO Research International
TMAU Urine Test

SEE UPDATES HERE
$150 plus
shipping costs

for one test,

$250plus
shipping costs

for 2 tests over time.
TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please..
(supplied with test-kit)

TMAU Test
Results Form

sent via email

For Questions and Answers, see

MEBO's Interactive
Q & A Forum

Test analysis will normally occur in batches of 15 to 20

DATE: 27 AUG 2014
Batch #11 shipped to lab: 5AUG14 (15 samples)
Now on : Batch #12
Samples analyzed since June 2012 : 208
Samples sold for Batch#12 not returned to MEBO : 10
Current samples received for Batch#12 : 4

Will send 15 to 20 samples to the lab for Batch#11.

Sonya's TMAU diet book

One of our group, Sonya McClinton, has written a 'low choline' recipe book. If you buy from Amazon through these links MEBO get a small % at no extra cost to the buyer


Amazon USA
38 sold

Amazon UK
14 sold
Don't have a kindle ? There are details on the right-side of the amazon pages how to download an app for smartphones, PC, or tablet. For Spain/Canada use the Amazon links in the left sidebar

tell others: send these links
Amazon USA : http://goo.gl/iisvYR
Amazon UK : http://goo.gl/mH2ZyN
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 8-AUG-2014:
£ 843.03/GBP
$ 513.00/USD

TOTAL at today's ROE
£1,148.27 = $1,929.84

MEBO UK PAYPAL FOR TRINZYME

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Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Upcoming get-togethers

TMAU support group in Ormond Beach, Florida
contact Hilda at hpostell@rocketmail.com

Let us know if you want a meetup listed

Skype Group

International Skype group

Join through skype : username "Jo Jo"
members so far : 71
download skype (free version)
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Search for skunkhugsj : Make him a contact
Or ask anyone in the group to add you to group

Bi-Weekly Group Calls

USA : (712) 432 1620
access code : 391629#
NON USA : add 001 prefixGeneral Conferences: normally every other Sunday starting at 2:00pm - 4:30pm Eastern Time.

Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phone line can be used anytime to talk to other sufferers
You don't need to talk. You can just listen

MEBO Community Outreach Program

Click here, Scroll down, Click on
"This belongs on CNN"
Cheryl Fields, Ph.D. (ABD)
MEBO Community
Outreach Director
Book uplifting seminars for free.

Click here for details and scroll downHome/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org


Cheryl's CNN campaign

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Diaspora

TOTAL DONATIONS: $262.50 = £156.47 (18AUG14)
1st shipment to Kenya 3JUN14 $92.75/USD
2nd shipment to Ghana 15AUG14 $104.56/USD
SUPPLEMENTS FOR AFRICA DRIVE


MEBO US PAYPAL ACCOUNT


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Thursday, May 29, 2008

Email from Dr Werner : Author of recent anecdotal TMAU-desmopressin paper

Werner, D.
"Die Trimethylaminurie (Fischgeruchsyndrom) - Hinweise auf eine neue Therapiemöglichkeit mit Desmopressin", Aktuel Urol 2007; 38: 406-407.
Pubmed abstract : http://www.ncbi.nlm.nih.gov/pubmed/17907069?dopt=Abstract

Dr. Werner was kind enough to write for this blog a summary entitled, "English Summary and Advice for Doctors/Patients" of his original paper published last year, [Trimethylaminuria (fish-odour syndrome)-- hints for a new therapeutic option with desmopressin]. This is a case study of a young boy who presents with enuresis, was treated with desmopressin, and his mother noted that his fishy body odor temporarily completely disappeared under this therapy. Dr. Werner invites physicians, scientists, and patients that support or disprove the postulated efficacy of desmpressin upon trimethyaminuria to contact him. He asks us to use his paper for the blog because, "The wider the information is spread, the higher is the chance to get some positive or negative responses from patients". Please keep in mind this is a coincidental, anecdotal observation on one case, and Dr Werner does not recommend this as a treatment for TMAU for reasons he states below.

Here is Dr Werners English Summary and Advice for Doctors/Patients :
Werner, D.

“Die Trimethylaminurie (Fischgeruchsyndrom) – Hinweise auf

Ein neue Therapiemöglichkeit mit Desmopressin”

English Summary and Advice for Doctors/Patients

The above mentioned article provides a case report of a child suffering from trimethylaminuria (TMAU), also called fish-odour syndrome. For other reasons (enuresis) the young boy was treated with desmopressin. His mother noticed that her son’s fishy body odour temporarily completely disappeared under this therapy. This effect could be reproduced for this patient. Based on this observation the author presented a possible molecular mechanism that might explain the effect and the simultaneously observed ineffectiveness of desmopressin against the original indication.

The article is based only on a single case that is not representative. More data and further evaluation are necessary for evidence. Therefore, the objective of this publication is to share the information with patients, practitioners, and scientists worldwide with the hope that similar observations may exist or be found. This could be the starting point for further tests and the development of a new therapeutic option.

Desmopressin (also called vasopressin, DDVAP, StimateTM, MinirinTM ) is a potent drug not approved nor registered for this indication. The adverse side effects might be higher than the possible benefit. The author (pharmacist and food chemist) is not entitled to encourage any testing or treatment in cases of TMAU and does not recommend it. This off-label use is the only responsibility of physicians and their patients.

The author appreciates any discussion and information from physicians or patients that support or disprove the postulated efficacy of desmopressin against trimethylaminuria. Please contact the author directly by e-mail:

Dr.Werner-Tornesch@t-online.de

27 May 2008


Full paper in German available at : Yahoo Trimethylaminuria forum files

Translation into English: TMAU Hints for a new therapeutic option with Desmopressin - translation into English

links on desmopressin :
http://emc.medicines.org.uk/emc/industry/default.asp?page=displaydoc.asp&documentid=661
http://www.rxlist.com/cgi/generic/desmoprt.htm

Recent FDA warning (Dec 2007) : http://www.fda.gov/CDER/DRUG/InfoSheets/HCP/desmopressinHCP.htm
Web MD article on warning : http://www.webmd.com/news/20071204/2-deaths-spur-bedwetting-drug-warning

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